Tuesday, July 15, 2014
Saturday, July 12, 2014
WE ARE BACK!
I know everyone is as eager as we are for this whole ordeal to be over. We are finally seeing some end in sight....woohoo! After 2 years and 10 months of postponements to the trial the Judge only gave them a one week delay and a new trial date of July 17th. Of course since that is a Thursday i'm thinking that the actual trial will get started the following week since it takes a while for the jury to be picked.
This blog will be the place to keep updated about the goings on throughout the trial. Unfortunately since my parents and I are subpoenaed to testify we can only be in the court room when we are on the stand. So we will have some family members as well as friends who will be there taking notes on what happens each day. When we know more information about the exact days, time and court room we will let you know so if you would like to attend and support our family you can.
Thank you all for your continued thoughts and prayers as we continue to find justice for Devin.
Katy
This blog will be the place to keep updated about the goings on throughout the trial. Unfortunately since my parents and I are subpoenaed to testify we can only be in the court room when we are on the stand. So we will have some family members as well as friends who will be there taking notes on what happens each day. When we know more information about the exact days, time and court room we will let you know so if you would like to attend and support our family you can.
Thank you all for your continued thoughts and prayers as we continue to find justice for Devin.
Katy
Saturday, April 20, 2013
April update
We are so sorry that we have not communicated for some time. The good news is that Devin has successfully had an implant in his skull without any infection for two and a half months. This was the the third attempted surgery to correct the defect, and after infections, that caused the removal of his plates, we can now believe that he is clear of infection.
Now that he has a covered skull, he can now begin Physical Therapy, Occupational Therapy, and Speech Therapy. which was not avaible to him, because of liability issues. The process to access these programs takes time, and is very frustrating, and to this point has not been provided. Bureacracy?
The trial of the person who caused this trauma (allegedly?) has been postponed 4 times because the defense has had a "problem" with finding someone who can refute the case against him. We have 6 doctors testimonies; one being a forensic Doctor that believes this was a non accidental trauma caused by the suspect. You cannot believe how frustrated we are with the process, we just want this nightmare to be over. We appreciate the love and concern you have shown to Devin, and your continued prayers for Devin and Katy are not just desired, but they are NEEDED. We still are on a LONG road to full recovery body and soul. Devin will need to have this plate replaced twice as he grows, his abilities are quite a bit behind where they should be and the Trial always hangs over our heads.
Now that he has a covered skull, he can now begin Physical Therapy, Occupational Therapy, and Speech Therapy. which was not avaible to him, because of liability issues. The process to access these programs takes time, and is very frustrating, and to this point has not been provided. Bureacracy?
The trial of the person who caused this trauma (allegedly?) has been postponed 4 times because the defense has had a "problem" with finding someone who can refute the case against him. We have 6 doctors testimonies; one being a forensic Doctor that believes this was a non accidental trauma caused by the suspect. You cannot believe how frustrated we are with the process, we just want this nightmare to be over. We appreciate the love and concern you have shown to Devin, and your continued prayers for Devin and Katy are not just desired, but they are NEEDED. We still are on a LONG road to full recovery body and soul. Devin will need to have this plate replaced twice as he grows, his abilities are quite a bit behind where they should be and the Trial always hangs over our heads.
Dick Adams (Gampy)
Devin right before Surgery on Feb. 5th
Resting in moms arms in the recovery room
About 5 days post surgery, happy and home
About a week ago and he looks like a normal boy again (his ear is lower on his right side as well as his hairline but being his mom I am the only one who notices that)
Saturday, January 26, 2013
Long day in Loma Linda
Well our official pre-op is done and the surgery is still set for February 5th. We started out our day at our neurosurgeons office and completed all the paperwork, very boring stuff. As we were leaving though, Devin took off after our doctors voice straight into his office, Dr Sadanand was blown away at how well he was walking in just the short time since we saw him last. He is has so much compassion and support for us and we could not be happier with our doctor.
After that we had to kill 2 hours until our pre anesthesia appointment. Then even after we got there we had to wait a few hours to be seen. Thank you God my mom came to help me out because we were all about to lose it. I have prayed countless prayers that Devin would walk but as so many people have told me, my job of wrangling him got 10 times harder. The most heartbreaking part of the day was watching my son scream so hard he could hardly breathe for 45 minutes straight. It took 3 tries with 3 different lab techs to take his blood. He has definitely been through a lot but this was one of the harder times for me to watch. We made it through again like we have so many times, it never gets easier though. Only 10 days left!
Tuesday, January 22, 2013
He is Walking!
So we have another new advancement in Devins recovery!! He is now a walker!
About 2 weeks ago me and my mom were watching Sanjay Gupta and he was doing a piece on fish oil and how it has helped 2 different men after traumatic brain injuries. I asked our doctor if this was something we should try and he instead advised us to try coconut oil. That night I started adding a tablespoon of it with every meal and shockingly within 24 hours Devin went from walking 2 feet on his own to 20. This may like a normal advancement with age but he hasn't progressed in his walking in 6 months. Then over night he took a huge leap forward. We are so beyond blessed that we have a doctor who is not opposed to "new" or "controversial" medicine. We also thank our wonderful Lord and Savior who heals.
Lastly surgery is 2 weeks from today!!
About 2 weeks ago me and my mom were watching Sanjay Gupta and he was doing a piece on fish oil and how it has helped 2 different men after traumatic brain injuries. I asked our doctor if this was something we should try and he instead advised us to try coconut oil. That night I started adding a tablespoon of it with every meal and shockingly within 24 hours Devin went from walking 2 feet on his own to 20. This may like a normal advancement with age but he hasn't progressed in his walking in 6 months. Then over night he took a huge leap forward. We are so beyond blessed that we have a doctor who is not opposed to "new" or "controversial" medicine. We also thank our wonderful Lord and Savior who heals.
Lastly surgery is 2 weeks from today!!
Monday, January 21, 2013
Long awaited
Sorry for the lack of information I have sent out in the last few months. I love this medium for getting out the information regarding Devin and where he is at currently, but to be honest I absolutely hate writing lol. Maybe next time I will post a video of me talking instead?
Well basically since Devin's last surgery we spent quite a bit of time at home working all of his medicines all around the clock. Daunting task and I have been told by a few nurses that this is what I should do for a living... I dont know about that. All I know is that with it being my own son its easier to do it. He has now successfully been off his meds for a month, hooray!!
On this past Friday we went to see his Neurosurgeon Dr. Sadanand, as far as he is concerned everything is looking great for another surgery. If you all remember it is an exact redo of his last surgery where they put in a synthetic peace made out of PEEK. The only, and huge difference this time is they are also consulting the infectious disease department and Devin will be on antibiotics the morning of and one week after his surgery. Hopefully this will kick any possible infection in the bud. Oh and before I forget his surgery is scheduled for FEBRUARY 5th!!
Thank you all for your love, thoughts and prayers! Its not just me and Devin affected by all of this, but it also plays a HUGE toll on my parents. The anxiety in our household is at an all time high but it has to be said that with the help of my parents we are were we are.
Well basically since Devin's last surgery we spent quite a bit of time at home working all of his medicines all around the clock. Daunting task and I have been told by a few nurses that this is what I should do for a living... I dont know about that. All I know is that with it being my own son its easier to do it. He has now successfully been off his meds for a month, hooray!!
On this past Friday we went to see his Neurosurgeon Dr. Sadanand, as far as he is concerned everything is looking great for another surgery. If you all remember it is an exact redo of his last surgery where they put in a synthetic peace made out of PEEK. The only, and huge difference this time is they are also consulting the infectious disease department and Devin will be on antibiotics the morning of and one week after his surgery. Hopefully this will kick any possible infection in the bud. Oh and before I forget his surgery is scheduled for FEBRUARY 5th!!
Thank you all for your love, thoughts and prayers! Its not just me and Devin affected by all of this, but it also plays a HUGE toll on my parents. The anxiety in our household is at an all time high but it has to be said that with the help of my parents we are were we are.
Thursday, October 11, 2012
The most recent...
Hello All,
We apologize for the lack of update but would like to give you all some information regarding the most recent hurdle that little Devin and Mommy Katy are facing. On October 7th, Katy had to take Devin to the ER at Loma Linda Children's Hospital for a 103.8 fever. Doctors determined that he had some form of infection and admitted him to the hospital for observation. They ran tests, took blood samples and did a cerebral spinal fluid (csf) test. The CSF test came back a cloudy orange color and it should be clear which suggested that he did indeed have an infection. They did a CT and MRI and we aren't sure what the results of those test were, but they determined that his head was definitely infected and they would have to remove the "new skull." Surgery took place on Tuesday October 9th and it was successful. They were able to remove the new skull without complication and Devin was moved to an ICU room. He currently is on antibiotics to fight the infection (we are unsure what kind of infection it is) and will go home with a PICC line again and likely be on antibiotics for 6-8 weeks. All of this is VERY similar to the last situation when they had to remove his bone flap.
Devin is doing well considering all of the challenges that he continues to face. He is truly a miracle boy and has the fight of a champion! Please continue to pray for him and his family. He remains in the hospital as of today (October 11th) and will hopefully go home in the next couple days. Once he fights the infection doctors will evaluate him and consider another surgery to replace the flap.
Thank you for your overwhelming support, words of encouragement, prayers, texts, emails and love.... we all truly couldn't get through this tragedy without the support of our prayer warriors!!
Much love and blessings to you all!
We apologize for the lack of update but would like to give you all some information regarding the most recent hurdle that little Devin and Mommy Katy are facing. On October 7th, Katy had to take Devin to the ER at Loma Linda Children's Hospital for a 103.8 fever. Doctors determined that he had some form of infection and admitted him to the hospital for observation. They ran tests, took blood samples and did a cerebral spinal fluid (csf) test. The CSF test came back a cloudy orange color and it should be clear which suggested that he did indeed have an infection. They did a CT and MRI and we aren't sure what the results of those test were, but they determined that his head was definitely infected and they would have to remove the "new skull." Surgery took place on Tuesday October 9th and it was successful. They were able to remove the new skull without complication and Devin was moved to an ICU room. He currently is on antibiotics to fight the infection (we are unsure what kind of infection it is) and will go home with a PICC line again and likely be on antibiotics for 6-8 weeks. All of this is VERY similar to the last situation when they had to remove his bone flap.
Thank you for your overwhelming support, words of encouragement, prayers, texts, emails and love.... we all truly couldn't get through this tragedy without the support of our prayer warriors!!
Much love and blessings to you all!
1 Peter 1:5-9
who through faith are shielded by God's power until the coming of the salvation that is ready to be revealed in the last time. In this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials. These have come so that your faith--of greater worth than gold, which perishes even though refined by fire--may be proved genuine and may result in praise, glory and honor when Jesus Christ is revealed. Though you have not seen him, you love him; and even though you do not see him now, you believe in him and are filled with an inexpressible and glorious joy, for you are receiving the goal of your faith, the salvation of your souls
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